Is Fibromayalga Real?

Couldn't agree more.

Anxiety/Depression - I won't get into as they're so consuming, especially if you're one of us that our brains don't ever shut off and have 3-4 constant thoughts going at any given second 24/7. I didn't know some people actually have moments of silence in their brain until my wife told me that a few years ago.

OCD - it's on a whole nother level of ****** up. I scream in my head when somebody makes a comment about having OCD because they're picky. In reality, it's such a ****** up mental process that makes you think horrible things (and I mean horrible) and have to do rituals (mental or physical) just to be able to move. And you know those thoughts and rituals are the stupidest thing on earth but absolutely cannot control or stop them.

The worst part of all three of those is when you're incredibly introverted, you can't talk about it with anybody. My wife and I have been together for 25 years (I'm 40) and she has seen the pain but I've only been able to talk about it a couple times. I finally sent her an email a few months ago about how Anxiety, Depression, OCD, and ADHD combine to **** me up.

But that's enough about that as I don't want to derail the convo further - it's a whole different thread.

I'm incredibly empathetic and sympathetic to people that have mental issues, unexplained physical issues, or other chronic diseases - diagnosed by blood test or not.

I will always assume Fibro and migraines exist. I assume that some with use it as a catch-all and others may use it as an exaggerated excuse, but that doesn't diminish it for everybody else.
Hey just want to say glad you are still here man. All those things aren't a joke...they get a bad wrap because loads of people who have normal feelings (nervousness, excitement) instantly label it as anxiety or panic. Or they feel sad because something happened as depression or they like things neat as OMG i'm so OCD.

As a previous poster stated it would be on one hand to be able to give those people something to actually experience those things for a short period of time but on the other hand, I don't wish it on anyone.

Not to derail this and maybe we should take it to PM but have you ever checked out your full hormone panel including thyroid? Only asking because after years of different meds with minimal relief finally did some deep dives because I was at ends with it and found some interesting things. Going to start working on addressing a few to see if maybe they play a little bit of a role to provide some relief.
 
I'm hyper-sensitive to strong smells like paint, cologne, perfume, cigarette smoke.

I've had people tell me before that they think I'm imagining things. Yeah, I can just make my lungs, nose, and chest start burning when I'm around someone. Or I can make myself get a bad headache just by thinking about it.

I dont have any experience with Fibromayalga but I believe people are experiencing what they say.
My older brother was convinced I was making up my asthma and allergies. Growing up on a farm there were certain things I struggled with. Packing hay in the barn was just awful but not as bad as baling straw (usually if I stayed outside I was fine). The dusts would practically kill me. Fly spray would lock my chest up right now. Anyway, my brother thought I was making it up to get out of certain work. It wasn't until years later after he married and had kids that he told me he was wrong. He came to that conclusion after pulling old carpet in the farm house for his kid's room and he started having breathing issues. I got "I guess you weren't making all that up."
 
Not sure where you got your numbers. Women needed a federal law for inclusion, some of the history regarding is here:


This link focuses on drug trials for cardiovascular, psychiatric, and cancer related treatments:


The second link provides numbers regarding women’s illnesses:

“According to the CDC, cardiovascular disease and cancer are the leading causes of death in the United States. The research identifies that this fact is the same when looking at just the female gender. Furthermore, psychiatric disease impacts a large portion of women.

The results uncovered an underrepresentation of women in clinical trials for all three diseases. Compared to the 49% of people with cardiovascular disease who are women, only 41.9% of clinical trial participants for cardiovascular disease medications were women.

Similarly, 51% of cancer patients are women, but drug trials only had a female participation rate of 41%.

The starkest lack of portrayal was in the psychiatric studies. While 60% of psychiatric patients are women, only 42% of psychiatric clinical trial participants are women.”

Also to Cowgirl’s point about the difference in women:

“An article published in the American Family Physician Journal found significant differences in how women absorb, distribute, metabolize, and excrete drugs. Additional studies have also found that women have differing adverse side effects to medications and experience these side effects at higher rates.”




There are other articles, like from the American heart association that mention women having higher rates, but when you read through them, it talks about heart failure after an initial heart attack. When you read the article that I posted, it mentions that roughly 75-80% of sudden heart attacks (basically your killers) occur on men. So a good chunk of the men had died already and some of the articles I read had mentioned that the women in the study were older. Well, if you are older, heart failure and issues kinda go hand in hand.

Not saying how studies should be run, but as we know, there are certain things that certain sexes are more likely to die from. Do we want a 50/50 split on all?

I also didn't point out what @davegilbertson posted about. How do they get volunteers for these? In the past (thinking my parents generation) that it was considered cruel if to have women in certain situations (heck, I even mentioned in a different thread that just a couple years ago that it was considered too cruel to execute a woman versus a man in the same murder and the woman was responsible for the kids deaths in the multiple murders -- so it still has that stigma today in certain levels). If you have a 100 patients and have a 60/40 split, I still think you can deduce some good information out of it. Many times it seems that the overall reports are reported, I'm hoping that our medical field researchers are better than that and also are breaking it down into many other groupings.

The reality is, each person most likely will respond differently than every other, the best thing that can be done is find the largest group that they can well with their research and work with that.
 
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I didn’t have time to look up heart disease until now so I waited to double check myself before commenting, but do you suspect that men make up most of the majority of these studies since they are the most likely to suffer from them? Massive heart attacks are 70-89% (wide number that the info reports) occurring with men. Also, men are considered 4x as likely to be an alcoholic than women.

So are some of these studies just trying to help the greatest amount of people and not being sexist in their studies?
I think "medical studies" are voluntary, paid medical experiments where you agree to live in a facility for a set amount of time, and receive treatment/meds in exchange for payment. Had a roommate sign up for some of them. I imagine guys generally must be more open to be tested upon.
 
I have a friend that continually goes to the hospital only to be told there is nothing wrong with her. They won't even prescribe her pain pills. Why does this condition only affect middle-aged women who are lonely and need attention?
Is there any chance that it is all in their head? I know 2 women that have such bad social anxiety that the idea of going out in public will actually make them ill.
 
Is there any chance that it is all in their head? I know 2 women that have such bad social anxiety that the idea of going out in public will actually make them ill.
Yeah. She's a hypochondriac. Thought she had cancer last year. She had back surgery 2 years ago. The doctor told her unless she did rehab and lost weight her back would probably not get better. She never did rehab and gained about 80lbs now complains about her "botched" back surgery. And yes she has had all strains of covid. Long-form covid too of course. I figured she'd catch polio this year too but it hasn't happened yet.
 
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Insurance has no reason at all to claim it’s fake…..

But it's OK for people to fake injuries and such to get insurance money. A guy I work with told me his brother-in-law as had terminal cancer for the last 15 years, hence the reason he doesn't work. The guy has never ever been diagnosed from what the my co-worker told me.

Same guys BIL and his wife went around the Hy-Vees in Omaha getting a cake at each one and then walking around the store and when they were about to leave they would go to customer service and ask for their money back, even though they didn't pay for it in the first place. After about hitting up around 5 stores, Hy-Vee caught onto their scheme. It's very sad that others work their butts off to make a living and then you have people that scheme up all these ways of trying to make a quick buck.
 
I wish people could take a pill and know how that feels for 5 minutes. The world would be a far different place.
I have often thought this about my asthma attacks when they are triggered by people who expose me to their smoke. Just what it’s like to fight for every breath you take when it feels like you have an elephant on your chest.
 
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But it's OK for people to fake injuries and such to get insurance money. A guy I work with told me his brother-in-law as had terminal cancer for the last 15 years, hence the reason he doesn't work. The guy has never ever been diagnosed from what the my co-worker told me.

Same guys BIL and his wife went around the Hy-Vees in Omaha getting a cake at each one and then walking around the store and when they were about to leave they would go to customer service and ask for their money back, even though they didn't pay for it in the first place. After about hitting up around 5 stores, Hy-Vee caught onto their scheme. It's very sad that others work their butts off to make a living and then you have people that scheme up all these ways of trying to make a quick buck.
This is why I'm skeptical of things like Go-Fund me pages. I had a landlord in Des Moines that was on disability for some diabetic condition. He was working under the table as a carpenter. He even layed sod in my backyard.
 
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I think "medical studies" are voluntary, paid medical experiments where you agree to live in a facility for a set amount of time, and receive treatment/meds in exchange for payment. Had a roommate sign up for some of them. I imagine guys generally must be more open to be tested upon.
True. One of my articles didn't showed on my post but not on any others, I did add some to my post.
 
This is why I'm skeptical of things like Go-Fund me pages. I had a landlord in Des Moines that was on disability for some diabetic condition. He was working under the table as a carpenter. He even layed sod in my backyard.
The worst I ever saw of something faked was my friend was working at a factory with this guy, he worked second shift. He had called me out of the blue and at the same time I mentioned that this guy who worked at the same place as him came in. He told me that the guy had not been at work for a couple weeks because his only daughter was sick and had died. So the whole company had thrown money together and gave it to him to help offset expenses. After telling me this, I had asked if the daughter was like 7 years old or so, and he said yes. Then mentioned to him that he was with a daughter and was in with a check from a local church to pay for his vehicle repairs. My friend went back and the company checked on stuff and fired the guy since they found out he made the whole thing up so he wouldn't get fired for not showing up to work. The guy "killed off his daughter" to avoid something.
 
$$$

When they're calculating/negotiating an injury settlement it was very much taken into account

That’s my point. Saying that insurance companies think it’s fake is evidence of nothing except the dishonesty of the company.
 
That’s my point. Saying that insurance companies think it’s fake is evidence of nothing except the dishonesty of the company.

Wait? What?!?

Are you saying insurance companies aren't completely honest???

I have one question for you....
How dare you?!?
 
Yeah. She's a hypochondriac. Thought she had cancer last year. She had back surgery 2 years ago. The doctor told her unless she did rehab and lost weight her back would probably not get better. She never did rehab and gained about 80lbs now complains about her "botched" back surgery. And yes she has had all strains of covid. Long-form covid too of course. I figured she'd catch polio this year too but it hasn't happened yet.

Unrelated to the fibro stuff but with the surgery response, does she live in rural Iowa? I know plenty of people in that setting that just go 'it is what it is' when met with the idea of doing PT for 5 minutes or exercising to help themselves.
 
Unrelated to the fibro stuff but with the surgery response, does she live in rural Iowa? I know plenty of people in that setting that just go 'it is what it is' when met with the idea of doing PT for 5 minutes or exercising to help themselves.
No she lives in Waukee.
 
Anyone that has unexplained pain, should make lifestyle changes to see if that makes a difference. No processed foods, no soda, no sugar (natural sugar in fruit is great and will help satisfy that craving), and no fast food, avoid restaurants in general. no vegetable oils and low quality oils. And completely eliminate gluten from your diet. Try that for three months and see how you feel.

Yes, blanket medical advice is always a good idea.
 
My Mom, sister, her daughter, and I all have experienced migraines once a month before our periods. Mine usually just a day or two and I usually went to work if I thought I could read. Got a ride though, did not trust driving. It usually gave me some weird fractal vision thing and hurt so much at times I vomited. If I couldn’t see well enough to read I couldn’t do much at work. Wasn’t every month, and stopped during menopause. Niece is still coping with it but works in a medical office and they are more understanding. I remember when I was very young, maybe 4, seeing my mom crying on the couch and she couldn’t see and was scared she didn’t know where I was. I had quietly been coloring in the same room and she couldn’t see me.

What's even more messed up is that it's passed on genetically. My mother had the same issue for decades. I'm the oldest and I got them horribly as a kid and now as an adult (male), I still get them occasionally, but mine are more sinus triggered. I passed it on to my oldest, though for him they are way less frequent and not as debilitating.
 
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